The Sweetheart Ball is a very special event to us 💗

We held the first one on the year anniversary of Nicole’s diagnosis, because we wanted to mark the day with something positive & to show that Batten Disease had tried, but hadn’t succeeded in breaking us. Every year gives us an opportunity to share our journey, to tell them about Batten Disease & raise awareness of our cause.

Here is our presentation that we shared with our guests at 2019’s ball, which took place on 6 July.