Fighting for Their Lives Video
We have contributed to a video featuring the families of children affected by CLN2 for the BDFA.
Fighting for Their Lives
This video has been put together by the families of children affected by CLN2. They have come together to take a stand on the injustice they are facing trying to secure treatment for their precious children. The negotiations are relentless and stressful and children with CLN2 Batten disease deteriorate rapidly They are united in their fight. We are united in their fight with them. We will all never stop fighting. PLEASE SHARE WIDELY USING THE HASHTAG #fightingfortheirlivesPosted by Batten Disease Family Association on Thursday, 4 July 2019