Our aims are to:
❤️ Raise awareness
❤️ Fund medical research
❤️ Make a difference
❤️ Bring hope to others

Batten Disease is an utterly devastating condition, yet it is widely unheard of…and we want to change that. You will meet our family, learn more about the condition, you will also be able to find out all of the different ways you can help us. Thank you visiting and we hope you are inspired to join us and be part of our journey.

Love from Gail, Matthew, Louis, Nicole and Jessica xxx

Latest News

We were delighted to be awarded ‘Champion Family’ in the Chronicle Champions awards, with our campaign to make Brinuera available on the NHS being commended.


If you’d like to donate, please see our trust bank account details below.

Sort code : 20-59-97
Account number : 73158594
Account name : The Rich Family Donation Trust

Anything you can spare is greatly appreciated, thank you so much.

Can You Help?

We have been blown away by the generosity of people offering their time, donating items for our fundraising events and raising money for our campaign.

Please get in touch if you think you might be able to help.