Hello and welcome to…

The Nicole Rich Foundation

We are delighted to welcome you to our website!
Our aim is to raise awareness of Batten Disease to fund medical research & support into CLN2 specific treatments & ultimately find the cure…
Batten Disease is an utterly devastating condition, yet it is widely unheard of…and we want to change that. You will meet our family, learn more about the condition, you will also be able to find out all of the different ways you can help us.
Thank you visiting and we hope you are inspired to join us and be part of our journey.
Love from the Rich family x

We were so proud to host our very first fundraising & awareness ball in aid of The Nicole Rich Foundation on 16th September 2017.

We always knew it was going to be a special night, but we couldn’t have imagined just how special it turned out to be!

Once you choose hope, anything is possible…


Get Involved

We’re delighted to be partnering with the Batten Disease Family Association

Make a Donation

We hope our website gives others strength in their difficult times – whatever life throws at you, anything is possible if you have hope in your heart. x

We are delighted to be the official charity alongside the BDFA for Team Strongness, a truly amazing community which sees 100% of all fundraising and merchandising profits go towards charities.

Get in Touch

We have been blown away by the generosity of people offering their time, offering to take our family on wonderful experiences, bringing us the most thoughtful gifts and raising money for our fundraising campaign.  Please get in touch and join our family.


We are delighted to be working with the Batten Disease Family Association (BDFA) to raise awareness of Batten Disease and fundraising towards vital medical research and the care of Nicole and Jessica.

Please visit the BDFA site to find out more about the condition.

Medical Stars

We would like to pay a special mention to the amazing doctors and nurses who have cared for Nicole so far both at the Royal Victoria Infirmary in Newcastle and Great Ormond Street Hospital in London.